Tuesday, November 11, 2008

Etiology of Neurosacroidosis

Written by Elizabeth, October 13, 2008

As taken from a letter to the editor in the Journal of Rheumatology (http://www.jrheum.com/subscribers/07/11/2313.html#references)
“The etiology of sarcoidosis remains unknown, although some observations suggest interactions between genetic inheritance and environmental or infectious agents. Several microorganisms have been implicated as potential causes of sarcoidosis, i.e., mycobacteria, Borrelia burgdorferi, Propionibacterium acnes, and Rickettsia helvetica.”

We have been looking into an alternative approach and possible cause as multiple 'evolved' bacteria.....something that may have warrant, but wouldn't be available for years to try - even if it is the right thing. However, we are plowing through and gathering information from the few labs and doctors that exist in hopes that we can soon test me for some of these things (my DNA and others). Even if this was ready to try now, my chance of dying or having significant irreversible damage leading to me needing assistance for my basic activities (breathing machine, feeding tube, etc) is too great, but it may prove the right thing to do in the near future....

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